Will You Empower Someone About HD Today?
Increase The Awareness Of Huntington's Disease
Talk About It!
Dignity, Comfort, Peace - The Path to a Full Life is Caring. They are there for our family now. We provide home care and hospice care to seriously ill patients and their families throughout southeastern Michigan. Care is provided by a team of trained caregivers in patient homes, hospitals, nursing homes, assisted living facilities and in our 30-bed residence in Ann Arbor. We care for people of all ages - from infants to the elderly. Our services reach Jackson, Lenawee, Livingston, Monroe, Oakland, Washtenaw and Wayne counties with branches in Ann Arbor, Trenton and Northville. - Arbor Hospice is a not-for-profit 501(c)(3) organization. For more information call: 1-888-992-CARE (2273).- HDSA - Huntington's Disease Society of America website. Soon after the legendary folk singer, Woody Guthrie, lost his battle with HD, his widow Marjorie, sought out other families affected by this devastating disease. In 1967, a handful of dedicated volunteers formed the Committee to Combat Huntington’s Disease. Today, HDSA continues the mission Marjorie Guthrie began, emerging as a national organization consisting of 37 community-based volunteer chapters, two national field directors and a national office that provides leadership, information, support and guidance to our HD families.
- HDSA Michigan Chapter - The Huntington's Disease Society of America, Michigan Chapter and its Support Groups are a fellowship of relatives, friends and persons with HD, who share their experiences, strengths and hopes in order to solve common problems. We believe Huntington's Disease is a family illness that changed attitudes in addition to support can aid in living each day to its fullest!
Resources
- BRODA Seating - The People to call on when you need assitance with New, Used or Rental of the Best Chairs designed for people with HD. They are there for our family now.
- National Institute of Neurological Disorders and Stroke - The mission of NINDS is to reduce the burden of neurological disease - a burden borne by every age group, by every segment of society, by people all over the world.
- Huntington's Disease Drug Works - The primary objective of the "HDDW Individual Therapeutic Trials" (ITT) is to facilitate a medically supervised and personal best treatment plan for the person with Huntington's disease. It is known that many people with symptomatic Huntington's disease as well as many asymptomatic individuals "at risk" are taking drugs and over-the-counter agents that have been shown beneficial in genetic models of this disease. HDDW's primary objective in the ITT endeavor is to bring both of these HD groups, asymptomatic and symptomatic, to observed and supervised care while taking these drugs.
- theHDlighthouse - The HDLighthouse mission is to present and explain the latest research findings so that HD families can become proactive in their care, have hope for the future, and make good decisions in the present.
- Hereditary Disease Foundation - Formed in 1968, the Hereditary Disease Foundation spearheaded the Venezuela Collaborative Huntington's Disease Project, which led to the identification in 1983 of a genetic marker for Huntington's disease. That landmark finding demonstrated for the first time that the newly developed DNA markers could be used successfully to map human genes.
